People living with dementia from South Asian communities will benefit from improved culturally sensitive support, thanks to a new online toolkit launched by universities and charities.
The toolkit hosted by the Race Equality Foundation will provide enhanced care for members of South Asian communities – many of whom receive significantly less effective dementia care from statutory services compared to their counterparts from White British communities.
People from South Asian communities are at greater risk of developing dementia but are less likely to access all points of the care pathway – and more likely to present in crisis and/or at a later stage. They are more likely to face barriers including a late or missed diagnosis, reduced access to treatments, and inappropriate or inadequate support coupled with problems caused by language barriers. They often rely on local, community-led organisations for support.
Alarmingly, the number of people from South Asian and communities with dementia is expected to increase sevenfold by 2051, due in part to inequalities in service provision and the increased risk of other health factors associated with dementia. For White British people, the rise is expected to be more modest – doubling over the same time period.
Combatting the current one-size-fits-all model, the South Asian Dementia Pathway Toolkit (ADaPT) aims to provide more accessible, tailored resources enabling services to provide more culturally appropriate care. Designed to address the uphill struggle that many people from South Asian backgrounds face, the toolkit includes short films, animations, awareness raising materials, assessments and post-diagnostic support – all of which have been culturally and linguistically adapted for people from South Asian communities.
Read more about the South Asian Dementia Pathway Toolkit (ADaPT)
